Opportunity Information: Apply for MP CPI 20 004
The Sickle Cell Disease Clinical Data Collection Platform grant is a Fiscal Year 2020 discretionary funding opportunity offered by the U.S. Department of Health and Human Services (HHS) through the Office of the Assistant Secretary for Health and the Office of Minority Health (OMH). Authorized under Section 1707 of the Public Health Service Act (42 U.S.C. 300u-6), the program reflects OMH's broader mission to improve the health of racial and ethnic minority communities and reduce persistent health disparities. Because most people living with sickle cell disease (SCD) in the United States are members of racial and ethnic minority populations, the project is framed as a direct effort to strengthen clinical care delivery and, in turn, improve patient outcomes.
At its core, the opportunity funds the creation of a standardized clinical data collection platform that can be shared across multiple medical centers and healthcare facilities. OMH is seeking to test whether a common, interoperable data system can function as a central repository that supports several high-value goals at once: analyzing clinical data from large patient cohorts, making it easier to recruit patients into clinical trials, measuring how well care aligns with evidence-based guidelines, and helping clinicians and researchers identify gaps in knowledge and new areas for research. The vision is that better, more consistent data infrastructure will translate into more coordinated care and faster learning across the SCD community, rather than leaving clinics and researchers to work in disconnected silos.
The successful applicant is expected to lead the full lifecycle of this effort, starting with planning, design, and development of the platform itself. Beyond building the technical system, the awardee must also develop an implementation strategy for aligning and integrating the platform with real-world clinical care sites. The grant calls for establishing clear criteria for selecting pilot sites, then identifying and recruiting a set of participating organizations structured as "hub" and "satellite" sites to test the shared platform in practice. Another major expectation is the creation and management of a collaborative learning community, meaning an organized network where participating sites can share lessons learned, troubleshoot barriers, and promote consistent adoption of standardized data practices.
In addition to implementation, OMH emphasizes evaluation and long-term impact. The awardee must evaluate how the platform is used, which typically includes whether sites can successfully contribute data, whether the data can be analyzed across locations, and whether the platform supports intended functions like trial recruitment and guideline adherence monitoring. The project must also produce dissemination and sustainability plans, signaling that OMH wants results and infrastructure that can extend beyond the pilot period. When fully developed, the platform is expected to be made broadly available to healthcare providers treating people with SCD and to researchers, with the aim of enabling wider uptake and lasting improvements in care quality and scientific progress.
This opportunity aligns with HHS strategic priorities that focus on modernizing the healthcare system, protecting health in everyday environments, and sustaining advances in science. It also aligns with the Assistant Secretary for Health priorities related to sickle cell disease, health transformation, opportunity, and innovation. Administratively, the opportunity number is MP-CPI-20-004 and the CFDA number is 93.137. HHS anticipated making a single award with an award ceiling of $1,000,000. The funding opportunity was posted July 16, 2020, with an original application deadline of August 18, 2020, and eligibility was listed as "Others" with further details referenced in the full eligibility section of the announcement.Apply for MP CPI 20 004
- The Department of Health and Human Services, Office of the Assistant Secretary for Health in the health sector is offering a public funding opportunity titled "Sickle Cell Disease Clinical Data Collection Platform" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.137.
- This funding opportunity was created on Jul 16, 2020.
- Applicants must submit their applications by Aug 18, 2020 No Explanation. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- Each selected applicant is eligible to receive up to $1,000,000.00 in funding.
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
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